Leadership
Executive management
Biographies of the leaders who manage our day-to-day activities.
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Sam Barrell
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Stéphane Maikovsky
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Jonathan Morgan
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Adrien Lemoine
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Karen Skinner
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George Orphanides
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Claire Pimm
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Fiona Roberts
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Clare Terlouw
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Matthew Owens
Board of trustees
Our trustees bring extensive expertise in biomedical sciences, biotech and pharma, finance, law and medicine. They oversee and support our strategy to help us deliver our charitable aims.
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Dr Ian Gilham
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Sam Barrell
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Dr Terri Cooper
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Stéphane Maikovsky
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Dr Sameer Mistry
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Daniel Morgan
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Ian Nicholson
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Jo Pisani
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Susan Wallcraft
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David Zahn
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Pankaj Davé
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Paul Nioi
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Prabhu Arumugam

Looking for more info about our approach and operations?
Latest news
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Could an existing antibiotic be used to treat rare liver disease?
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Celebrating 2 years of the network driving innovation for people with CF
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New £6m fellowship programme to help rare disease discoveries reach patients faster
