How we work with patients and communities

People with lived experience of health conditions bring unique and valuable knowledge to the research process.

We work with patients and communities, both directly and through our charity partners, to understand unmet needs and identify research priorities.

By involving patients as partners, we can ensure promising scientific discoveries lead to long-lasting impact.

What do we want to achieve?

We are committed to driving forward meaningful patient engagement in translational research.

We’re currently developing our strategy for patient engagement and will be working alongside the patient community to shape our approach.

Long-term, our aim is to support the development of a more equitable ecosystem where lived experience is embedded in every stage of translational science.

How you can work with us

We partner with patients, families, caregivers, communities and the general public to:

Understand lived experience and identify unmet needs

Prioritise research and guide our funding decisions 

Seek insights that inform strategy for our Translational Challenges

Convene multistakeholder discussions with the patient voice at the centre

Our work in action

The MND Insights Group

The MND Insights Group participants will make a huge difference and ensure that we capture important lived-experience insights that could unlock life-changing breakthroughs for people living with MND. 

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Partnering to create a bronchiectasis research community

A partnership with Asthma + Lung UK to engage patients in research.

Working with patients to develop antimicrobials for people with Cystic Fibrosis

A partnership with the CF AMR Syndicate

Female Patient And Nurse Have Consultation In Hospital Room

Working with charities

We also provide advice and support to charities to help accelerate the progression of their funded research.

Who to contact

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