How we work with patients and communities
People with lived experience of health conditions bring unique and valuable knowledge to the research process.
We work with patients and communities, both directly and through our charity partners, to understand unmet needs and identify research priorities.
By involving patients as partners, we can ensure promising scientific discoveries lead to long-lasting impact.
What do we want to achieve?
We are committed to driving forward meaningful patient engagement in translational research.
We’re currently developing our strategy for patient engagement and will be working alongside the patient community to shape our approach.
Long-term, our aim is to support the development of a more equitable ecosystem where lived experience is embedded in every stage of translational science.
How you can work with us
We partner with patients, families, caregivers, communities and the general public to:
Understand lived experience and identify unmet needs
Prioritise research and guide our funding decisions
Seek insights that inform strategy for our Translational Challenges
Convene multistakeholder discussions with the patient voice at the centre
Our work in action
The MND Insights Group
The MND Insights Group participants will make a huge difference and ensure that we capture important lived-experience insights that could unlock life-changing breakthroughs for people living with MND.
Working with charities
We also provide advice and support to charities to help accelerate the progression of their funded research.
Who to contact
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Natasha Ratcliffe
Read bio: Natasha Ratcliffe
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