Our work with the MND Community

At LifeArc our mission is to uncover the most important research questions and urgently address the needs of MND research. But we can’t do this alone, we need to hear from the real experts who live with the condition.

Panel discussion at the LifeArc Translational Science Summit on MND and Rare Dementias. 3 expert speakers who have MND are on stage with a LifeArc employee chairing the discussion

About the MND Insights Group

We are collaborating with the MND Insights Group, a group of individuals with lived experience of MND, to identify the most pressing needs of those affected by MND.

To date, the group has helped to deliver 8 workshops and 2 community surveys. These activities gathered insights on a wide range of topics about living with MND.

These perspectives are now being used to inform funding calls, programmes and research design, ensuring scientific progress reflects what truly matters to people with MND and their families.

Two hands cradle a string of paper dolls including children and adults, one is a wheelchair user.

Discover expert and community-driven insights

MND insights report on future treatment priorities

This report, from our MND Insights Group, contains the findings from workshops and a community-wide survey.

Download report

MND biomarker roadmap report

We hosted a roundtable with MND biomarker experts to tackle key challenges and explore solutions. This report shares insights to advance the field.

Download report

MND insights report on how technology could help with daily challenges

These perspectives are now being used to inform funding calls, programmes and research design, ensuring scientific progress reflects what truly matters to people with MND and their families.

Download report

The LifeArc Translational Science Summit on MND and rare dementias

Across a series of engaging sessions, we explored cutting-edge approaches to therapeutic discovery, early diagnosis, digital solutions and patient impact.

Watch recordings

Read key takeaways