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Home » Rare disease
  • News releases

    LifeArc funds innovative rare liver disease clinical trial 

    The first patient has been recruited for the FARGO clinical trial, funded by LifeArc and PSC Support, which explores a…

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  • 3D illustration of cancer cells under the microscope
    News releases

    Research shows potential ‘life-transforming’ mole reversal therapy in rare condition

    Researchers at the Francis Crick Institute, UCL Great Ormond Street Institute for Child Health and Great Ormond Street Hospital for…

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  • LifeArc Translational Centres for Rare Diseases

    LifeArc Translational Centres for Rare Diseases We have invested £40 million into 4 Translational Centres for Rare Diseases, to unlock…

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  • Scientist pipetting in a lab
    News releases

    LifeArc launches £40m research centres that will unlock new tests, treatments and cures for people living with rare diseases

    Thousands of people living with rare medical conditions will get access to improved tests, treatments and potentially cures, thanks to…

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  • A female LifeArc scientist loads a plate into a lab machine
    News releases

    First-of-a-kind plan announced to get more children access to cutting-edge, proven gene therapy treatments for rare diseases

    Great Ormond Street Hospital (GOSH), supported by LifeArc and Great Ormond Street Hospital Children’s Charity (GOSH Charity), is announcing its…

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  • LifeArc-CSO fund for Scottish translational researchers

    LifeArc-CSO fund for Scottish translational researchers In association with the Chief Scientist Office (CSO) for the Scottish Government, we support…

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  • Image of a blue double helix DNA

    LifeArc gene therapy innovation fund

    LifeArc gene therapy innovation fund The LifeArc Gene Therapy Innovation Fund is a £5m annual fund to support manufacture of…

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  • Great Ormond Street Hospital entrance

    LifeArc and GOSH charity fund

    LifeArc and GOSH charity fund LifeArc and GOSH Charity support a joint funding scheme focused on helping GOSH researchers drive…

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  • 5 children of varied ethnicity stand outside smiling in a line with arms over each others' shoulders, the sun shining in the background.

    LifeArc and Action medical research fund

    LifeArc and Action medical research fund Action Medical Research and LifeArc want to improve the lives of children suffering from…

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  • A female scientist is wearing PPE in a lab, holding a pipette and carrying out an experiment

    LifeArc Philanthropic fund

    The LifeArc Philanthropic Fund The Fund provides grants and funding to academic researchers working to advance new treatments and diagnostics…

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  • Child affected by EB with her father. Photo ©Debra Austria

    Repurposing therapies for EB

    £2.5 million to develop therapeutics for Epidermolysis Bullosa (EB) LifeArc and DEBRA Austria are partnering to commit £2.5 million to…

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  • Female scientist wearing PPE is doing an experiment in a lab, looking at a vial

    Translational rare disease centres

    Translational rare disease centres With this £40 million we aim to build on the UK’s rich, rare disease research base,…

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