General Archive
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CADET Trial: Advancing deep brain stimulation for rare childhood epilepsy
CADET Trial: Advancing deep brain stimulation for rare childhood epilepsy We’ve partnered with GOSH Charity to fund an innovative clinical…
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LifeArc & Genetic Alliance UK – More trials, better data, faster access policy report
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Nasal insulin trial: exploring a new treatment option for Phelan-McDermid Syndrome
Nasal insulin trial: exploring a new treatment option for Phelan-McDermid Syndrome We’re funding a major clinical trial to discover whether…
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News releasesCould a nasal insulin spray improve the lives of children and young people living with a rare condition?
We are funding a new multi-million pound trial that will reveal if a simple nasal spray could improve daily life…
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News releasesLifeArc-funded trial gives new hope for children with devastating rare genetic disorder
The parents of a three-year-old boy born with a devastating, life-limiting genetic condition say they are now excited for his…
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The use of CARBALIVE in the treatment of cholestatic liver disease
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News releasesBirmingham researchers lead world-first trial for rare liver disease treatment funded by LifeArc
University Hospitals Birmingham NHS Foundation Trust (UHB) has treated the first patient in an early-phase clinical trial investigating whether a…
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ART-EB: An innovative drug repurposing trial to find treatments for a rare skin disorder
ART-EB: An innovative drug repurposing trial to find treatments for a rare skin disorder We’ve partnered with DEBRA UK to…
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Transforming Diagnosis and Treatment: Rare Disease Summit
About the event The Rare Disease Summit will explore how the UK can accelerate progress in diagnosing those living with…
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ArticlesLifeArc Pathfinder Award recipients uncover genetic cause of severe nerve condition in children
Researchers at the University of Manchester have identified a rare genetic mutation that causes severe nerve damage in children following mild infections. Their findings…
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ArticlesLifeArc and Genetic Alliance UK launch a new report calling for the acceleration of research and development (R&D) for rare diseases
LifeArc and Genetic Alliance UK have launched a report calling for the UK Government, NHS, researchers, industry, patient groups and…
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Accelerating R&D for rare disease in the UK: An opportunity to change millions of lives
This report is a call to transform the UK’s rare disease future. It outlines how we can smooth the rare…