Leadership
Executive management
Biographies of the leaders who manage our day-to-day activities.
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Stéphane Maikovsky
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Rachael Davidson
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Graham Duce
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Dave Powell
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Karen Skinner
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Jason Slingsby
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Clare Terlouw
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Anna Tomlinson
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Amanda Wooding
Board of trustees
Our trustees bring extensive expertise in biomedical sciences, biotech and pharma, finance, law and medicine. They oversee and support our strategy to help us deliver our charitable aims.
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Dr Ian Gilham
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Lynne Robb
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Dr Terri Cooper
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Stéphane Maikovsky
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Dr Rima Makarem
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Dr Sameer Mistry
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Daniel Morgan
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Ian Nicholson
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Jo Pisani
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Susan Wallcraft
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David Zahn
Looking for more info about our approach and operations?
Latest news
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LifeArc launches £40m research centres that will unlock new tests, treatments and cures for people living with rare diseases
Read more: LifeArc launches £40m research centres that will unlock new tests, treatments and cures for people living with rare diseases -
First-of-a-kind plan announced to get more children access to cutting-edge, proven gene therapy treatments for rare diseases
Read more: First-of-a-kind plan announced to get more children access to cutting-edge, proven gene therapy treatments for rare diseases -
New £6.2m partnership will help to eliminate a deadly disease affecting children and vulnerable people in Kenya
Read more: New £6.2m partnership will help to eliminate a deadly disease affecting children and vulnerable people in Kenya