General Archive
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News releasesLifeArc launches £40m research centres that will unlock new tests, treatments and cures for people living with rare diseases
Thousands of people living with rare medical conditions will get access to improved tests, treatments and potentially cures, thanks to…
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News releasesFirst-of-a-kind plan announced to get more children access to cutting-edge, proven gene therapy treatments for rare diseases
Great Ormond Street Hospital (GOSH), supported by LifeArc and Great Ormond Street Hospital Children’s Charity (GOSH Charity), is announcing its…
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Funding: LifeArc-CSO fund for Scottish translational researchers
Funding: LifeArc-CSO fund for Scottish translational researchers In association with the Chief Scientist Office (CSO) for the Scottish Government, we…
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Funding: LifeArc gene therapy innovation fund
Funding: LifeArc gene therapy innovation fund (The LifeArc gene therapy innovation fund is currently closed) The LifeArc Gene Therapy Innovation…
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Funding: LifeArc and GOSH charity fund
Funding: LifeArc and GOSH charity fund We’ve partnered with GOSH Charity to support a joint funding scheme focused on helping…
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Funding: LifeArc and Action Medical research fund
Funding: LifeArc and Action Medical research fund Action Medical Research and LifeArc want to improve the lives of children suffering…
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LifeArc Philanthropic fund
Funding: LifeArc Philanthropic Fund (The LifeArc Philanthropic Fund is currently closed) The Fund provides grants and funding to academic researchers…
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Funding: Repurposing therapies for epidermolysis bullosa (EB)
Funding: Repurposing therapies for epidermolysis bullosa (EB) LifeArc and DEBRA Austria are partnering to commit £2.5 million to fund projects…
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Funding: Translational Rare Disease Centres
Funding: Translational Rare Disease Centres With this £40 million we aim to build on the UK’s rich, rare disease research…
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Muscular Dystrophy Translational Research Fund
Muscular Dystrophy Translational Research Fund The Muscular Dystrophy Translational Research Fund is a joint fund created by LifeArc and Muscular…
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News releasesLifeArc funds pivotal clinical trial to treat an ultra-rare genetic disease with possible link to leader of the mutiny on the Bounty in 1789
A pivotal clinical trial to look at repurposing the UK-licensed medicine, deferiprone, for patients with neuroferritinopathy, an ultra-rare genetic disease…
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Articles6 challenges in rare disease research and how we can overcome them
Rare conditions, individually, have low patient numbers. However, with more than 7,000 rare diseases identified, collectively there are millions of…