General Archive
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News releasesLifeArc and Sarcoma UK fund research to guide treatment decisions in rare cancer
£150,000 grant will fund a study of a biomarker test that could improve outcomes for patients with a rare sarcoma…
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The Pathfinder Award: Fast-tracking innovative rare disease research projects with £3 million of funding
The Pathfinder Award: Fast-tracking innovative rare disease research projects with £3 million of funding We have awarded £3 million across…
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ArticlesRare Disease Day 2023 – Robbie’s story
Robbie has a rare genetic neurodegenerative disease known as AP-4 Hereditary Spastic Paraplegia (AP-4 HSP) subtype SPG47.
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ArticlesFour ways we support rare disease research
LifeArc provides a range of advice, funding and science to help scientists turn promising research into potential treatments.
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ArticlesLifeArc awards £3 million to advance promising early rare disease research from the lab to the patient
Pump-prime funding to help researchers get innovative approaches off the ground
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ArticlesLiving with genetic sight loss – a family story
Late-onset retinal degeneration (L-ORD) is a rare inherited eye disease that leads to blindness in older people.
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ArticlesCan an innovative gene therapy help people with Hunter syndrome?
Danny was diagnosed with Hunter syndrome when he was three years old.
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ArticlesLiving with a rare but incurable liver disease
A young actor had to battle a rare liver disease before he could start out on his career.
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News releasesNew study explores unique approach to treat a rare liver disease
A research study looking into a new approach to treat primary sclerosing cholangitis (PSC) is progressing to clinical trials.