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  • Scientist in LifeArc's lab pipetting into vials
    News releases

    LifeArc and Sarcoma UK fund research to guide treatment decisions in rare cancer

    £150,000 grant will fund a study of a biomarker test that could improve outcomes for patients with a rare sarcoma…

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  • LifeArc scientist inserting an electronic pipette into a small conical flask containing liquid cell culture.
    Articles

    Translational research into children’s rare diseases enters 5th year of collaborative funding

    Accelerating research that will have a significant impact on the treatment of children and young people

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  • Pharmacist holding medicine box and capsule pack in pharmacy drugstore.
    News releases

    LifeArc launches £40m funding call to create Translational Rare Disease Centres

    Centres to become focal points for rare disease research translation and engagement with the patient community across the UK.

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  • LifeArc scientist selecting samples in orange-capped vials from a grey, multi-well plate for testing.
    News releases

    LifeArc plans two major funding calls to boost translational research in rare disease & lung health in cystic fibrosis

    The calls are part of our wider £100m programme to support scientific innovation for people living with cystic fibrosis.

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  • The Pathfinder Award: Fast-tracking innovative rare disease research projects with £3 million of funding

    The Pathfinder Award: Fast-tracking innovative rare disease research projects with £3 million of funding We have awarded £3 million across…

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  • The Edwards family, left-to-right, father, two children, mother
    Articles

    Rare Disease Day 2023 – Robbie’s story

    Robbie has a rare genetic neurodegenerative disease known as AP-4 Hereditary Spastic Paraplegia (AP-4 HSP) subtype SPG47.

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  • Rare Disease Day graphic
    Articles

    Four ways we support rare disease research

    LifeArc provides a range of advice, funding and science to help scientists turn promising research into potential treatments.

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  • Two young females wearing casual clothing and backpacks walk towards the doors of a large modern building.
    Articles

    LifeArc awards £3 million to advance promising early rare disease research from the lab to the patient

    Pump-prime funding to help researchers get innovative approaches off the ground

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  • Woman and child waling into the entrance of the Great Ormond Street Hospital
    News releases

    Driving translational research into childhood rare diseases

    Four grants awarded to projects that aim to translate research discoveries into benefits for children affected by rare diseases

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  • Progress of building work at the gene therapy innovation hub
    Articles

    Advancing novel gene therapies into the clinic

    Report on progress to establish Innovation Hubs for Gene Therapies to advance promising research into life-changing new medicines.

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  • Maree-Todd headshot
    News releases

    LifeArc and Scottish Government work together to drive Scottish research into rare diseases

    LifeArc and the Chief Scientist Office (CSO) for the Scottish Government have today jointly awarded a total of £300,000 to…

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  • Articles

    Living with genetic sight loss – a family story

    Late-onset retinal degeneration (L-ORD) is a rare inherited eye disease that leads to blindness in older people.

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