How we work with patients and communities

People with lived experience of health conditions bring unique and valuable knowledge to the research process.

We work with patients and communities, both directly and through our charity partners, to understand unmet needs and identify research priorities.

By involving patients as partners, we can ensure promising scientific discoveries lead to long-lasting impact.

What do we want to achieve?

We are committed to driving forward meaningful patient engagement in translational research.

We’re currently developing our strategy for patient engagement and will be working alongside the patient community to shape our approach.

Long-term, our aim is to support the development of a more equitable ecosystem where lived experience is embedded in every stage of translational science.

How you can work with us

We partner with patients, families, caregivers, communities and the general public to:

Understand lived experience and identify unmet needs

Prioritise research and guide our funding decisions 

Seek insights that inform strategy for our Translational Challenges

Convene multistakeholder discussions with the patient voice at the centre

Our work in action

Partnering to create a bronchiectasis research community

A partnership with Asthma + Lung UK to engage patients in research

Group of three ladies wit their arms around each other smiling for the camera and laughing

Establishing a CF AMR network

The CF AMR Syndicate connects academics, industry, clinicians and people living with CF to accelerate the translation of new diagnostics and antimicrobials.

Close up of male patient with cystic fibrosis using a nebulizer

Our commitment to patient and public Involvement

LifeArc has joined the Shared Commitment to Public Involvement. This pledge aims to drive up standards of health research by improving the quality of public involvement.   

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Graphic of shaking hands

Working with charities

We also provide advice and support to charities to help accelerate the progression of their funded research.

Who to contact

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