The LifeArc-Translational Centres for Rare Disease Cross-Centre Hub
The Cross-Centre Hub brings together the expertise of Beacon for Rare Diseases, Genetic Alliance UK and LifeArc to unite the LifeArc Translational Centres for Rare Disease.
The LifeArc Translational Centres for Rare Disease were created to bring together the rare disease ecosystem and help overcome barriers to developing tests and treatments.
Support provided by The Hub
Patient engagement
Policy work
Targeted training
Read reports from The Hub
More trials, better data, faster access
The Hub’s Policy Working Group developed this report to highlight where policy can have the greatest impact in unlocking innovation for rare conditions.
Involvement by design
Genetic Alliance UK’s report on how to address structural and cultural barriers to patient and public involvement and engagement in academic research.
Watch case studies from The Hub
