LifeArc and Scottish Government work together to drive Scottish research into rare diseases

LifeArc and the Chief Scientist Office (CSO) for the Scottish Government have today jointly awarded a total…

Covid-19 hub shortlisted for Scottish award

Unique translational research hub for Covid-19 and other viruses was a finalist in the Scottish Knowledge Exchange Awards. 

Study reveals gene faults underpinning severe Covid-19

The study paves the way for new tests and treatments to protect people from infection.

Living with genetic sight loss – a family story

Late-onset retinal degeneration (L-ORD) is a rare inherited eye disease that leads to blindness in older people.

Can an innovative gene therapy help people with Hunter syndrome?

Danny was diagnosed with Hunter syndrome when he was three years old.

Living with a rare but incurable liver disease

A young actor had to battle a rare liver disease before he could start out on his career.

LifeArc – advancing innovation in rare disease

We act as a trusted partner to transform the way rare diseases are identified and treated.

LifeArc elects new Board Chair to drive charity’s ambitious strategy

Dr Ian Gilham appointed new Chair of Trustees to succeed Dr John Stageman when he steps down on 4 April after eight years.

New study explores unique approach to treat a rare liver disease

A research study looking into a new approach to treat primary sclerosing cholangitis (PSC) is progressing to clinical trials.